Luca is a four-year-old boy with Duchenne Muscular Dystrophy. He has some difficulty with transitions and walking endurance. What standardized tests and measures would describe his activity using the ICF framework?
Some options are the North Star Ambulatory Assessment (NSAA) to measure transitions and mobility, the Peabody Developmental Motor Scales (PDMS II), or the Pediatric Evaluation of Disability Inventory-(PEDI-CAT) used as a parent-reported measure.
- Cerebral Palsy Classification Systems:
- Gross Motor Function Classification System (GMFCS E&R) 6 mo-18 yrs
- Manual Ability Classification System (MACS) 4-18 yrs/ (MiniMACS) 1-4 yrs.
- Communication Function Classification System (CFCS) 2-18 yrs
- Eating and Drinking Ability Classification System (EDACS)
- Bimanual Fine Motor Function Classification System (BFMF)
- Functional Mobility Scale (FMS) 4-18 yrs, CP
- Other Classification Systems:
- Gillette Functional Assessment Questionnaire- Walking (FAQ-Walking Scale) 10 level classification of walking function (CP/other)
- Gross Motor Tests & Measures:
- Gross Motor Function Measure-66 (GMFM-66/ GMFM-88) 5 mo-16 yr, CP
- Functional Independence Measure for Children (WeeFIM) 6 mo-7 yr
- Functional Independence Measure (FIM) 8+ to adult *
- Alberta Infant Motor Scale (AIMS) Screen for motor delay. 0-18 mo. or until walking.
- Test of Infant Motor Performance (TIMP) 34 weeks posconcep tual age – 5 mo.
- Bayley Scales of Infant and Toddler Development, 3rd Edition (BAYLEY-III) Fine motor/Gross motor scales. 1-42 mo.
- Bruininks-Oseretsky Test of Motor Proficiency, Second Edition (BOT-2) (gait, functional mobility, UE function) 4-21.11 yrs
- Peabody Developmental Motor Scale-2 (PDMS-2) Birth-5 yrs
- Pediatric Evaluation of Disability Inventory (PEDI) Birth-8 yrs
- Pediatric Evaluation of Disability Inventory- Computer Adaptive Test (PEDI-CAT) birth through 20 yrs
- North Star Ambulatory Assessment (NSAA) specific to ambulatory children with Duchenne muscular dystrophy
- Test of Gross Motor Development, 2rd edition (TGMD-2) – locomotor & ball skills 3-7.11 yrs (norm referenced)
- Timed Tests:
- Timed Floor to Stand-Natural (TFTS-N) 5-14 yrs
- Five Times Sit to Stand (FTSTS) 6-18 yrs w/CP
- Supine to Stand Test (STST) 18+ yrs
- Timed Up and Go-In Children (TUG-IC) 3-12 yrs
- 10 Meter Walk Test (10MWT) 2 yrs + ^
- 30 Second Walk Test (30sWT) 5-17 yrs
- 2 Minute Walk Test (2MWT) 3-17 yrs +
- 6 Minute Walk Test (6MWT) 2 yrs +
- Gait:
- Dynamic Gait Index (DGI) 8-15 yrs
- Gait Outcomes Assessment List (GOAL) 7-16 yrs, CP
- ABILOCO-KIDS Measures walking ability of children with CP by parent report. Online scoring link. 6-15 yrs.
- Fine Motor Tests & Measures:
- Nine-Hole Peg Test (9-HPT) norms for dexterity. 3+ yrs.
- Children’s Hand Use Experience Questionnaire (CHEQ2.0) 6-18 yrs / (Mini-CHEQ) 3-8 yrs.
- ABILHAND-KIDS Measures the capacity to manage daily activities that require the upper limbs by parent report. 6-17 yrs
- Assisting Hand Assessment (AHA) 18 mo-12 yrs /Mini Assisting Hand Assessment (MiniAHA) 8 mo-18 mo.
- Both Hands Assessment (BoHA) 18 mo-12 yrs
- Box and Block Test (BBT)- unilateral gross manual dexterity 6 yrs +
- Observational Assessments:
- Questionnaire:
- Wheelchair Skills:
Many of the tests and measures in the activity domain quantify capacity while tests and measures in the participation category quantify performance. See this post for a discussion about capacity vs performance.
spritelypt 